Sunday, October 7, 2012

October 3, 2014

October 3, 2014.  That is what I am calling Calvin's Reset Date.  Our new journey started on August 23, 2012.  This is the day I received the call.  This was the day Calvin fell and had his first concussion.  Or so we thought at the time.  It was really the start of something else.  After his fall, things just didn't add up.  His daycare teacher was surprised he had a concussion because she never saw him hit his head very hard.  That comment stuck with me.  Charlie said that he never got a firm diagnosis at the hospital that he had a concusion.  A week later, his teacher said he fell and was a little disoriented, a little wierd for a few seconds.  She asked that we take him to the doctor for a peace of mind.  We sort of blew it off.  What we were going to say "His teacher says he falls over and is weird."  He's two.  He falls over.  He's weird.  A few weeks later on Sept. 18 it happened again.  In front of two other teachers.  He started crying, walked over, his lips turned blue and he shaked and he fell over.  What?  The word seizure came to mind when they said he trembled.  I took him to the doctor but he was fine so he got the all clear.  And a referral to a pediatric neurologist.  Fortunately, we got into see one within a week.  The doctor said that the best thing to do was to wait and see.  These episodes aren't hurting him.  Most likely, they are toddlers going hysterical, holding their breathe until they pass out.  Calvin does have hysterical tantrums.  We felt better about this all.  But things just didn't add up to us.  The part that we couldn't reconcile was the disorientation.  We have seen the fits but he was never disoriented or out of it as the daycare had always described.  The doctor ordered an EKG and an EEG just in case.  Both came back normal but the doctor had indicated that the EEG is not a very conclusive test.  We talked to everyone at his daycare about this and said that if it happens again, let us know and pay attention to the surroundings.  Was he provoked?  Toddlers can go off on the slightest little thing.  They can start screaming if you look at them wrong. 

But then it happened again.  On Wednesday, at about 4:00, he was walking around his daycare room, fell over, shaked and his lips turned blue.  Another mother was in there too and even commented it looked like he was having a seizure.  It was unprovoked and out of the blue.  We talked to the doctor about this latest episode and he decided to start treatment.  Calvin is now on anti-seizure medicine. 

It was very hard for us to put him on it.  Who wants to put their baby immediately on a drug.  But we have to trust our doctor.  The hardest part through all of this has been the fact that neither Charlie and I have seen it happen.  It just doesn't seem quite real to us yet.  We are trusting his daycare teachers.  But their have been so many witnesses and the descriptions are always the same.  We have information about seizures - what to do, what he can and can't do, things to watch out for.  It's very unreal to us.  But hopefully the medicine will work.  The doctor said that if he is seizure free for 2 years, he can be weaned off the medicine.  The last one was October 3, 2012.  So my plan is to get him off his medicine on October 3, 2014. 

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